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AMAC Joins with Coalition to Protect Patients’ Medical and Financial Data

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The Unique Patient Identifier, otherwise known as National Patient ID, would create a rich target for hackers and others, including foreign governments, wishing to steal the identity and private medical and financial details of Americans in and outside of government. Its funding and development should be strictly prohibited.

February 10, 2022

Dear Majority Leader Schumer, Madame Speaker Pelosi, Minority Leaders McConnell and McCarthy, Chairman Leahy, Vice Chairman Shelby, Chairwoman DeLauro, and Congresswoman Granger:

On behalf of the undersigned individuals and organizations representing American citizens nationwide, we are writing to express our strong opposition to ending the longstanding prohibition on funding and development for the controversial, and very troubling, federal Unique Patient Identifier (UPI).

For more than 20 years, a ban on funding for the Unique Patient Identifier (aka National Patient ID) was maintained by U.S. Congressman Ron Paul (R-TX) and later U.S. Senator Rand Paul (R-KY). In 2019, U.S. Senator Rand Paul introduced S. 2538 to repeal the UPI from federal law. In a press release, Senator Paul stated:

As a physician, I know firsthand how the doctor-patient relationship relies on trust and privacy, which will be thrown into jeopardy by a National Patient ID. Considering how unfortunately familiar our world has become with devasting security breaches and the dangers of the growing surveillance state, it is simply unacceptable for government to centralize some of Americans’ most personal information.

We agree that a National Patient ID undermines the doctor-patient relationship and that a new government number to link a patient’s medical records from womb-to-tomb would centralize patient data into a national medical-records system, whether centralized in the U.S. government or gathered and disseminated through a distributed database (eHealth Exchange) with centrally controlled access to patient data around the nation, or perhaps even around the world. We greatly appreciate Senator Paul’s strong stand against this federal enumeration scheme that would be the final measure to create and implement a national health surveillance system.

Likewise, we are grateful to Congressman Chip Roy (R-TX) – as well as co-sponsors of his bill – for his legislation to repeal this intrusive system of centralized federal control over the private and confidential medical records of all Americans.

A National Patient ID would become a government-issued tracking number, identification number, and access-to-care number (i.e. “no card, no care”). After the UPI became law in the Health Insurance Portability and Accountability Act of 1996 (HIPAA), Congressman Ron Paul stopped its development and funding by placing the following prohibition in the 1999 Appropriations bill:

None of the funds made available in the Act may be used to promulgate or adopt any final standard under section 1173(b) of the Social Security Act (42 USC. 1320d-2(b)) providing for, or providing for the assignment of, a unique health identifier for an individual (except in an individual’s capacity as an employer or a health care provider), until legislation is enacted specifically approving the standard.

This prohibition has been in place since 1999. But now the U.S. House of Representatives and the U.S. Senate have struck the funding prohibition out of the proposed appropriations bill to advance a government number that will identify and track every patient through the health care system. To reiterate, this unconstitutional federal number would be used not only to track patients, but to create a lifelong, fully linked cradle-to-grave medical record, conduct research using patient data without consent (as permitted by the permissive HIPAA data-sharing rule, which is considered a permissive data-sharing rule, not a privacy rule), and become the only way to access medical care in America. It would also mean the end of unbiased, fresh second opinions for patients.

The UPI would also create a rich target for hackers and others, including foreign governments, wishing to steal the identity and private medical and financial details of Americans in and outside of government. In short, it will make Americans more vulnerable, violate their rights, and threaten our national security.

National systems beget national systems: a national patient ID will create a national data system, facilitating the transition to a national health care system, where access to care is controlled by the federal government.

The UPI will also facilitate the creation of complete dossiers on Americans, particularly as the troubling collection of financial, social, and lifestyle “Social Determinants of Health” (SDOH) data in the electronic health record advances. Last, but not least, it will facilitate coercion, control, and interference in private medical decisions through profiling of patients, profiling of physicians, and the advance of value-based payments, with “value” defined by third parties far from the exam room.

Therefore, Senator Schumer, Madame Speaker, Senator McConnell, Senator McCarthy, Mr. Chairman, Mr. Vice Chairman, Madame Chairwoman, and Representative Granger, we are asking you to end the proposal that will violate patient privacy and consent rights and eliminate the patient’s personal control over their most sensitive data.

Specific Requests: For the sake of all Americans, and for the cause of patient-freedom and confidence in the health care system, we respectfully request that the U.S. Senate and U.S. House maintain the prohibition on funding and development of the Unique Patient ID. Instead, consider signing on to the repeal of the UPI, as introduced in H.R. 5812 by Congressman Chip Roy (and 8 co-authors) and S. 3124 by U.S. Senators Rand Paul and Marsha Blackburn.

Thank you for your attention to this important matter.

If you, or anyone on your committee should have questions, please do not hesitate to contact Twila Brase, president of Citizens’ Council for Health Freedom at 651-646-8935.

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